IFOPA Research Update and Participating in the FOP Registry

IFOPA Research Development & Partnerships Director, Danielle Kerkovich, PhD and IFOPA Executive Director Michelle Davis share about the variety of ways the IFOPA supports FOP research.

🌎 For Instructions on how to turn on YouTube Translations visit: https://www.ifopa.org/instructions_fo...

💻Learn more about participating in the FOP Patient Registry: https://www.ifopa.org/fopregistry
💻Learn more about contributing to the FOP Biobank: https://www.ifopa.org/biobank

What is FOP? Fibrodysplasia ossificans progressiva (FOP) is an ultra-rare disease that causes bone to grow in muscles, tendons and ligaments, severely limiting movement and impacting all aspects of their lives.

Who is the IFOPA? The IFOPA is a nonprofit organization that funds research to find a cure for FOP while supporting, connecting and advocating for individuals with FOP and their families, and raising awareness worldwide.

Connect to us on social media:
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Want to hear from us? Sign up for our monthly eNewsletter at https://www.ifopa.org/connect

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Donate: Join with us to fight FOP and support families in their journey: https://www.ifopa.org/donate

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